Med Care. METHODS. Walking is the only explicit assessment criterion. Post MW, Boosman H, van Zandvoort MM, et al. PRO. The Burden of Stroke Scale, Stroke Impact Scale and Quality of Life Index all contain 64 items and the Instrument for Young Hemorrhagic Patients contains 54 items. Title: Stroke Specific Quality of Life Scale Author: ISC Created Date: The development of the ''Stroke and Aphasia Quality of Life Scale-39 (SAQoL-39)'' was based on the idea that stroke-specific quality-of-life scales were not appropriate for the people with aphasia . The Stroke-Specific Quality of Life scale (SSQOL) was developed in 1999 as a patient-centered outcome in stroke research to replace the use of more generic quality of life (QOL) measures. The World Health Organization (WHO) defines quality of life as individuals . Although a number of stroke-specific quality of life scales have been developed,6-9 most exclude stroke survivors with aphasia and/or cognitive decline who are in fact those most prone to social isolation and exclusion10,11. Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Our purpose was to develop and test a short version of the SS-QoL. No disease-specific instrument has been available to measure treatment-induced changes in QoL over time. Psychometric properties of the Stroke and Aphasia Quality ... However, the limited evidence on psychometrics of Yoruba version of SS-QoL 2.0 (SS-QoL(Y)) is a significant shortcoming. The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. Williams LS, Weinberger M, Harris LE, et al. PDF JRRD Volume 52, Number 3, 2015 Pages 323-332 The SS-QOL, Short Form 36, Beck Depression . 20. It is a self-report measure for people with stroke and aphasia, typically administered with the help of an interviewer. The stroke-specific quality of life (SSQOL) questionnaire was developed to assess the quality of life in stroke patients. Stroke 1999;30:1362}, year = {}} The 9 included articles assessed 7 different PROMs: EuroQol 5D (EQ-5D), Health Utility Index (HUI), mRS, Quality of Life after Brain Injury overall scale (QOLIBRI-OS), Subarachnoid Haemorrhage Outcome Tool (SAHOT), Stroke-Specific Quality of Life scale (SS-QoL), and the short version of the SS-QoL. The purpose of this study was to establish the reliability and validity of the Italian version of the Stroke Impact Scale 3.0 (SIS 3.0), a specific and multidimensional instrument that assesses quality of life (QOL) in stroke survivors. PDF Outcome Measures in Stroke - EBRSR Stroke 1999 Jul;30(7):1362-9. Setting: A stroke unit that provides acute care and rehabilitation for stroke patients in Frederiksborg County, Denmark. Aim To test the reliability and validity of the Turkish version of the Stroke-Specific Quality of Life Scale (SS-QOL). The first steps in this process are described here, including (1) the development of items and domains with the use of quali-tative data from stroke survivors and (2) initial reliability, validity, and responsiveness data from the first patient The scale consists of 49 questions grouped into 12 domains [13] . BACKGROUND: The number of stroke survivors is increasing worldwide, and because stroke survivors are usually living with sequelae, health-related quality of life is growing in importance. Also called a "brain attack" and happens when brain cells die because of inadequate blood flow. [PDF] Stroke and Aphasia Quality of Life Scale-39 (SAQOL ... A cross-sectional design was utilized, and functional independence and psychosocial QoL of consecutive stroke survivors undergoing rehabilitation were assessed with the motor subscale of the Functional Independence Measure (motor- FIM) and the psychosocial subscale of the Stroke-Specific Quality of Life Scale-12 (SS-QoL- 12) respectively. Journal of Neurology, Neurosurgery, and Psychiatry, 82 , 283-286. Assessing the Stroke-Specific Quality of Life for Outcome ... Background . Development and validation of a short version of the ... PDF Measuring Changes in Quality of Life in Persons with ... Validating Migraine-specific Quality of Life Questionnaire ... The Stroke and Aphasia Quality Of Life Scale-39g (SAQOL) is a health related quality of life measure. BACKGROUND & AIMS: Subjects with short bowel syndrome (SBS) have impaired quality of life (QoL). The stroke and aphasia quality of life scale-39 (SAQOL-39): evaluation of acceptability, reliability and validity. Our purpose was to develop and test a short version of the SS-QoL. Widely used for stroke. A short version of the SS-QoL was developed and tested here. Completion rates are suboptimal and could relate to test burden. This study presents the initial development of a valid, reliable, and responsive stroke-specific quality of life (SS-QOL) measure, for use in stroke trials. Aim To evaluate the psychometric properties of the third version of the ECVI-38. Development of a stroke-speci!c quality of life scale. The SS-QOL questionnaire consists of 49 items in the 12 domains of energy, family roles, language, mobility, mood, personality, self-care, social roles . Background: The Stroke Impact Scale (SIS) is a stroke-specific, quality of life measure recommended for research and clinical practice. It is a self-report measure for people with stroke and aphasia, typically administered with the help of an interviewer. 1 The SSQOL includes 12 domains that cover traditional health-related QOL topics (eg, social and psychological measures) and stroke specific topics (eg, language, mobility, vision, upper extremity function . The Stroke-Specific Quality of Life scale (SS-QoL) is a well-validated measure of Health-related Quality of Life in patients with stroke, but, with 49 items, its length is a disadvantage. Development of a stroke-specific quality of life scale. Low sensitivity. Title: Stroke Specific Quality of Life Scale Author: ISC Created Date: The SAQOL-39 is an acceptable, reliable, and valid measure of HRQL in people with long-term aphasia and its usefulness in evaluative research and routine clinical practice is investigated. In the current clinical practice, the implementation in the clinical routine of monitoring systems of patients' outcomes has led to an increased generation and use of several measures for the assessment of patients' quality of life (QOL). A short version of the SS-QoL was developed and tested here. . Stroke-Specific Quality of Life (SS-QOL) Scale is one of the commonest disease-specific quality of life measures initially developed and validated for ischemic stroke patients. The major items are energy, family roles, language, mobility, mood, personal-ity, self-care, social roles, thinking, upper-limb function, vision, and work/productivity. Quality of Life (QoL) assessment has been an important part of the evaluation of stroke patients and their treatment for more than 30 years. No stroke-specific HRQOL measure is currently available. Quality of life was measured with the stroke-specific quality of life (SSQOL) scale. The Stroke Specific Quality of Life Scale (SS-QoL) (Williams, Weinberger, Harris, Clark, & Biller, 1999) appears to be an interesting alternative to the SIS. Background and purpose: Stroke has an effect on many aspects of quality of life (QoL) and therefore it is important to measure the magnitude of the impact. "Psychometric comparisons of the Stroke Impact Scale 3.0 and Stroke-Specific Quality of Life Scale." Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation 19(3): 435-443. Stroke Impact Scale Stroke Specific Quality of Life . 1981 Aug;19(8):787-805. Health and Quality of Life Outcomes 9:5. Also, these measures do not distinguish items for generic and diabetes-specific HRQoL. The scale consists of 49 items in the 12 domains.Each domain consists of 3 to 10 items that are averaged to generate an overall score.Total score minimum value . Diabetes mellitus is a widely diffused chronic condition which impacts on several aspects of patients' lives. NEWSQOL could also be used as a means of improving health professional / patient communication. 1999; 30 1362-1369 24 Duncan P W, Wallace D, Min Lai S, Johnson D, Embretson S, Jacobs Laster L. The Stroke Impact Scale version 2.0. Quality of Life post stroke measures. Each item is scored from 1 to 5. Perceived Quality of Life Scale (PQoL) - Income Meets Needs Satisfaction Scale . Methods Secondary analyses of 3 different studies. It measures energy, family roles, language, mobility, mood, personality, self care, social roles, thinking, upper extremity function, vision . Validation of the Stroke Specific Quality of Life Scale (SS-QOL): Test of reliability and validity of the Danish version (SS-QOL-DK). The study and assessment of stroke rehabilitation has sparked the development of numerous outcome measures applicable to one or more of its many dimensions. J Neurol Neurosurg Psychiatry 2011; 82:283. van Straten A, de Haan RJ, Limburg M, et al. being/quality of life5. 2003;34 (8):1944-1950. 5 Quality of Life Assessments. (2010). Methods Cross sectional survey of 141 aneurysmal SAH patients. [10] The resulting instrument - the stroke and aphasia quality of life-39 (SAQoL-39) - is proven to be a valid and reliable measure for the assessment of HRQoL in people with aphasia. 1999) as a single measure for the assessment of HRQOL in this population. Iranian Journal of Neurology, 14(2), 94-100. Outcome Measures in Stroke Rehabilitation pg. The Stroke-Specific Quality of Life Scale (SS-QoL 2.0) developed by Williams et al. Excellent validity and reliability. This scale consists of 49 items in the following domains: Energy, family roles, language, mobility, mood, personality, self-care, social roles, thinking, upper extremity function, vision and work/productivity. Find it on PubMed. Adams HP: Baseline NIH Stroke Scale score strongly predicts outcome after stroke: A report of the Trial of Org 10172 in Acute Stroke Treatment (TOAST). Methods Secondary analyses of 3 different studies. METHODS: Classical test theory and Food and Drug Administration (FDA) guidance were applied for development and . Background and purpose: Stroke has an effect on many aspects of quality of life (QoL) and therefore it is important to measure the magnitude of the impact. Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Therefore, the aim was to develop and validate an SBS-specific QoL scale. Several functional limitations following stroke contribute to the denigrated QOL in this population. Aims: To translate and culturally adapt the American SS‐QoL . Perceived Generic and Disease-Specific Health-Related Quality of Life: General (For all diseases) Outcomes and End Points: Stroke 1999; 30:1362-9 (Full text article) Here the . Development of a stroke-specific quality of life scale. Among these tools is the Stroke-Specific Quality-of-Life (SSQOL) scale, which was developed as a comprehensive measure of multiple effects in poststroke patients. Background and purpose Disease specific quality of life measures have been validated for patients with ischaemic stroke and intracerebral haemorrhage, but not for patients with aneurysmal subarachnoid haemorrhage (SAH). Stroke. FINDINGS. The scale domains and items were derived from a series of interviews with post-stroke patients. To develop a comprehensive stroke-specific patient-based measure so that the impact of neuroprotective drugs and other therapeutic interventions on quality of life (QoL) can be fully assessed; to facilitate the assessment of post-stroke QoL in clinical practice. Basic Attributes . Background: Stroke is a major detriment to the quality of life (QOL) in its victims. Development of a stroke-specific quality of life scale. Methods: Secondary analyses of three different studies. Welcome, the Journal of Chinese Medicine is the foremost English language journal on all aspects of Chinese medicine including acupuncture, Chinese herbal medicine, dietary medicine and Chinese medical history and philosophy. The assessment is composed of 49 items within 12 domains that include such items as energy, family roles, mobility, and self-care. Stroke 1999; 30:1362. This study assessed the test-retest reliability, internal consistency, convergent . Find it on PubMed These scales will vary in specificity, such that some drill down to assessing QOL in different domains, while others will serve as a more concise, global assessment. Patients were assessed using the SIS 3.0, the SF . CAS Article PubMed Google Scholar 15. Stroke. Development and validation of a short version of the Stroke Specific Quality of Life Scale. SF-36 (PCS): Physical Component Summary score, CRA (negative): Caregiver Reaction Assessment (negative domain score), SS-QOL: Stroke Specific Quality of Life Scale; CRS II Caregiver Reciprocity . Evaluation of reliability, validity, and sensitivity to change. The stroke-specific quality of life scale (ECVI-38) is the first Spanish-language instrument for evaluating the quality of life in individuals who have survived a stroke. Development of a stroke-specific quality of life scale. Stroke-Specific Quality of Life Scale SS-QLS includes 49 items. Stroke specific quality of life questionnaire: Test of reliability and validity of the Persian version. Satisfaction scale for subject physical health, as a part of the Perceived Quality of Life Scale (PQoL). No stroke-specific HRQOL measure is currently available. The Stroke Impact Scale (SIS) and the Stroke-Specific Quality of Life Scale (SS-QOL), according to Salter and associates , are the two stroke-specific instruments providing the most comprehensive evaluation regarding various aspects of life function related to health. The Stroke Specific Quality Of Life scale SS-QOL: It is a patient-centered outcome measure intended to provide an assessment of health-related quality of life (HRQOL) specific to patients with stroke only. The short version was developed using data from 141 patients with . The SS-QOL measures energy, mood, family roles, language, mobility, self-care, social roles, thinking, personality, and upper extremity . The Sickness Impact Profile: development and final revision of a health status measure. It is an adapted version of the Stroke-Specific Quality of life scale (SS-QOL, Williams et al., 1999). Migraine-Specific Quality of Life Questionnaire Version 2.1 The 14-item MSQ is designed to measure how migraines affect and/or limit daily functioning across 3 domains: RR (7 items assessing how migraines limit one's daily social and work-related activities), RP (4 items assessing how migraines prevent these activities), and EF (3 items . The SS-QOL is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with stroke. (Fischer et al, 1999) The MSQLI consists of the following individual scales, 5 of which have both a standard and a short form. (Stroke-Adapted Sickness Impact Profile-30) to 78 (Stroke-Specific Quality of Life Scale). Patients and methods 1. The MSQLI is a battery consisting of 10 individual scales providing a quality of life measure that is both generic and MS-specific. A short version of the SS-QoL was developed and tested here. Items in the American version of the Stroke Specific Quality of Life (SS‐QoL) Scale are developed with help from patients with stroke and include even language impairments. A disadvantage is subject burden and a short form is more practical to use in clinical and research setting. Change in Total SS-QOL (Stroke Specific Quality of Life Scale) Score During Follow-up [ Time Frame: 24 and 28 weeks of the study ] Scale for assessment of health-related quality of life. Williams LS, Weinberger M, Harris LE, Clark DO, Biller J. Objectives: To evaluate the psychometrics of the SAQOL-39 in a generic stroke sample. In attempting to . Of the stroke-specific scales, the Stroke-Specific Quality of Life Scale (SS-QOL) , in addition to the Stroke Impact Scale version 3.0 (SIS 3.0) , is the most comprehensive and frequently used patient-reported outcome measure [16-19]. We developed the short version using . Background and Purpose— Health-related quality of life (HRQL) is a key outcome in stroke clinical trials. The Modified Rankin Scale, National Institutes of Health Stroke Scale (NIHSS) and the Stroke Specific Quality of Life Scale (SS-QoL) were used for correlation analysis. responsive stroke-specific quality of life (SS-QOL) mea-sure, designed for use in stroke clinical trials. We recruited 233 outpatients with ischemic stroke. is one of the most comprehensive and frequently used patient-reported stroke-specific outcome measure [6, 18, 19]. It is an adapted version of the Stroke-Specific Quality of life scale (SS-QOL, Williams et al., 1999). The language dimension and the patient approach used in the process of item development in the SS-QoL 2.0 scale also make it a scale of choice [ 6 ]. Aphasia, a disturbance in the comprehension, processing, and/or expression of language, is a common consequence of stroke. It is more synthetic than the SIS, easier to use and understand, with a smaller number of items but a wider range of explored domains as Vision, Personality and Energy domains. Now that you have a basic understanding of QOL, let's look at five useful questionnaires you can apply in practice. The American Speech-Language-Hearing Association (ASHA) Quality of Communication Life Scale (QCL) was designed to assess the impact of a communication disorder on an adult's relationships and interactions with communication partners and on participation in social, leisure, work, and educational activities. A descriptive, cross-sectional design was used. To address these issues, the stroke-specific quality of life scale was modified in the UK for the purpose of using it with individuals having aphasia. Items in the American version of the Stroke Specific Quality of Life (SS-QoL) Scale are developed with help from patients with stroke and include even language impairments. 6 of 141 www.ebrsr.com Orpington Prognostic Scale Stroke . A stroke-specific HRQL scale that is 3 translation (s) Bibliographic reference (s) of the original questionnaire. The aim of this study was to assess the reliability and validity of the Korean short version of the Stroke-Specific Quality of Life Scale (SS-QoL-12K). Development and validation of a short version of the stroke specific quality-of-life scale. Methods—Domains and items for the SS-QOL were developed from patient interviews. Stroke. Lin, K.-C., Fu, T., et al. Background Stroke is a leading cause of activity limitation and participation restriction that negatively affect health-related quality of life. Background and purpose The Stroke Specific Quality of Life Scale (SS-QoL) is a well validated measure of health related quality of life in patients with stroke, but with 49 items its length is a disadvantage. Background and purpose The Stroke-Specific Quality of Life scale (SS-QoL) is a well-validated measure of Health-related Quality of Life in patients with stroke, but, with 49 items, its length is a disadvantage. Methods Secondary analyses of three different studies. The Stroke Specific Quality of Life Scale (SS-QOL) is an instrument designed to measure the quality of life (QoL) of stroke populations and is intended to identify common areas that affect health-related QoL (HRQoL). Methods Secondary analyses of three different studies. 28 Muus, I. , Williams, L. S. , & Ringsberg, K. C. (2007). The Stroke Specific Quality of Life (SS-QOL) scale assesses the functional impact of stroke across 12 domains using 49 items and a five-point Likert scale where higher scores indicate better functioning. Although numerous health-related quality of life (HRQoL) instruments are available for patients with diabetes, the length of these measures may limit their feasibility to routine practice. The scale domains and items were derived from a series of interviews with post-stroke patients. Williams LS: Development of a stroke-specific quality of life scale. Specific Quality Of Life scale (SS-QOL) is a patient-centered outcome measure intended to provide an assessment of health-related quality of life specific to patients with Stroke. 23 Williams L S, Weinberger M, Harris L E, Clark D O, Biller J. This study was aimed to develop a diabetes-specific quality of life questionnaire module (DMQoL) to be in conjunction . Objective: To test the reliability and validity of the Danish version of the Stroke Specific Quality of Life Scale version 2.0 (SS-QOL-DK), an instrument for evaluation of health-related quality of life.. Design: A correlational study.. ObsRO: SS-QOL Proxy version. MSQLI components: Health Status Questionnaire (SF-36) Modified Fatigue Impact Scale . Methods —Domains and items for the SS-QOL were developed from patient interviews. We are currently running a medium scale study (80 participants) which aims to explore the HRQOL of people with long-term aphasia and to assess the psychometric properties and the acceptability of the Stroke Specific Quality of Life Scale (SS-QOL) (Williams et al. Other quality of life measures specific to aphasia, the Communication Disability Profile (CDP) (Swinbourne, 2006) and the Stroke and Aphasia Quality of Life Scale (SAQOL- 39) (Hilari et al., 2003) also do not address communication confidence. 10.1161/01.STR.30.7.1362. The Stroke and Aphasia Quality Of Life Scale-39g (SAQOL) is a health related quality of life measure. BibTeX @MISC{Williams_billerj:, author = {Linda S. Williams and Morris Weinberger and Lisa E. Harris and Daniel O. Clark and José Biller}, title = {Biller J: Development of a StrokeSpecific Quality of Life Scale. QoL is difficult to define and no universal definition of this term exists. Psychometric evidence is necessary to establish scientific integrity and clinical usefulness of translations and cultural adaptations of the Stroke-Specific Quality of Life (SS-QoL) scale. This study presents the initial development of a valid, reliable, and responsive stroke-specific quality of life (SS-QOL) measure, for use in stroke trials. 5-10 minutes. This study aims to test the validity and reliability of the Korean version of the . 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